Support for Kidney patients

Information for those moving from PatientView to Patients Know Best
 

If you currently use PatientView (PV), your record will stop being updated with data in 2023.  Kidney patients wanting to continue to access test results and communicate with their care teams need to join PKB.

To ensure you continue to see your kidney data, from your unit when PV is switched off, make sure you register for your PKB record now. Your existing data in PV will be ready to view in your PKB record. 

Your local kidney centre and UK Kidney Association control when your data can be seen in PKB. PKB shows the data as soon as we receive it. If there are any delays to your data showing up, then the UKKA has to check:
  • Has the renal unit/kidney centre sent the data to the UKKA?
  • Has UKKA sent the data to PKB?
The UKKA are soon to release a new data dashboard, which will enable local kidney centres to sync the data themselves. Once this happens you will be able to go directly to your centre to resolve any delay/missing data.

Dates to know


Key dates for the switchover are:

Kidney centres in England – 8 January 2023, except for centres listed below

  • Ipswich – end of January 2023
  • Bristol Southmead Hospital – end of January 2023
  • Mid-South Essex – end of February 2023
  • Nottingham – end of February 2023
  • Northern Ireland centres– end of January 2023
  • Wales centres – end of February 2023
  • All Children’s Hospitals – end of February 2023
  • Scotland centres – end of March 2023

How to register


IF YOU ARE NOT REGISTERED WITH PKB

For patients in England and Wales : Click register below.

Register
And continue by clicking the ‘Register using NHS login’ Button. Please find a support guide here, and follow this from step 2.

IF YOU ARE REGISTERED WITH PKB 

For patients in England and Wales : Connect yourself to the UKKA team by clicking register below.

Register
And continue by clicking ‘Share’.
For patients in Scotland and Northern Ireland

wanting to register - provide your team at your kidney centre with your email address and when ready they will send you an invite to register.

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 If you need any guidance during the sign up process, you can contact PKB here for additional support. For any other queries regarding your kidney data, contact the UKKA here.

About the switchover from PV to PKB


The UK Kidney Association (UKKA) chose Patients Know Best (PKB) as its new software provider to support renal patients in receiving their healthcare data in a more modern and secure personal health record.  Along with kidney data, PKB allows patients to add their own information as well as receive other health information from other healthcare providers (if they are using PKB) giving a full health record in one easily accessible place. Find out more here.

Following the decision to move from PatientView to PKB in 2020, both organisations have been working hard to ensure existing PV patients are able to see all of their historic data, and receive new data, in PKB. This has meant engaging with all the kidney centres who are part of the national programme and training and readying them for the switchover. 

We understand that change can be challenging, and that it can take some time to get used to a new system. We are working with and listening to patients to make sure the data we send into PKB is easy to view and understand.

Our User Research team are always keen to hear from users of PKB.  See how you can get involved here.

Further support for PatientView users

A detailed guide to demonstrate how to use their Patients Know Best record and where to find corresponding features that are currently used in PatientView via our manual here.  
Cover of help document for patient view

The UKKA move to PKB

PatientView supports around 74,500 patients who receive care and treatment for kidney disease in the UK by sharing a view of their clinical data using a patient portal. The move to PKB will build on this work by replacing the current portal to add advanced features including, care planning, team-based messaging and an ecosystem of integrated devices.
Family looking at a laptop with PKB record on

Remember to register!

“Partnering with a leading provider of digital personal health records has been a significant step for the UK Kidney Association and showcases our determination to provide quality platforms to streamline the care of people living with kidney disease. It was important that as an organisation, we continued to evolve to meet the needs of the kidney communities that we serve.

Working with PKB, we aim to provide a secure environment in which patients can access their data and take control of how their information is shared, and with whom. For patients and kidney teams, this means increased security, and advanced features and functionality, including team-based messaging and an ecosystem of integrated wearable and monitoring devices to support clinical transformation.

Implementing digital solutions and empowering people living with kidney disease to access them is a core part of the quality improvement work that we undertake at the UK Kidney Association. We are looking forward to the positive changes that working with PKB brings and to offering people with kidney disease and our kidney communities with enhanced platforms and portals to streamline their care.”

Retha Steenkamp, Head of Operations, The UK Kidney Association/UK Renal Registry

Case studies

One of the first kidney teams to benefit from the move to Patients Know Best was the Kidney Dietetics team at Hull University Teaching Hospitals NHS Trust. The team are using the library of resources, secure messaging, care plans and questionnaires to improve the remote management of their patient cohort.

“The transformation for our service has been brilliant! We no longer have to rely on email to send patients their information and we can benefit from all the functions that PKB offers.” Katherine Durrans, Clinical Lead Renal Dietitian

Read more about their usage and see their resources here.

An explainer for renal teams

If you are a kidney centre who has previously used PatientView and want to know more about what this means for your team, you can find more information via our deploy site here.

Want to learn more about Kidney Care with Patients Know Best?

Contact Us