Case Studies

Introducing PKB at Bristol’s Major Trauma Centre – benefits analysis and case study - A benefits analysis and case study by North Bristol NHS Trust evaluating a proof of concept study on using PKB at the Bristol Major Trauma Centre.
Monitoring the safety of ketamine in treatment-resistant depression - Ketamine is newly recognised as a rapidly acting antidepressant which works in a different way to conventional antidepressants.
Putting online consultation at the heart of the teaching curriculum - University of Leicester’s Medical School is putting online consultation at the heart of its teaching curriculum for first-year medical students – a first for any university in the UK.
Patients Know Best lets Surrey view single care record - NHS organisations across Surrey have begun using patient-controlled personal health record technology to allow clinicians to view a single digital care record across four NHS trusts, GPs and four clinical commissioning group areas.
Improving quality of life and reducing unplanned admissions - Emergency care saves lives but preventing the need for emergency care saves even more lives. This is why PKB is teaming up with ‘The Symphony Complex Care Hub’ at South Somerset NHS Trust to help support patients to better manage their long term conditions and lower the level of unplanned admissions taking place in the area.
Visceral Myopathy, a Patient Story from St Marks Hospital - St Mark’s Hospital patient Jason Murtagh has a condition called Visceral Myopathy, a highly rare chronic disease which means that his gut fails to properly absorb nutrients – indeed the condition is so rare that few gastroenterologists will encounter a case in their careers. 
Managing complex conditions across geographical boundaries - The Royal College of Physicians “Personal health records (PHR) – landscape review” report in 2016 highlighted the work of St Mark’s Hospital using Patients Know Best.
Halving HIV clinic times in North Manchester General Hospital - The Regional Infectious Diseases Unit (RIDU) based at North Manchester General Hospital is one of the largest units of its kind anywhere in the UK and offers specialist clinical services to patients across Greater Manchester – and more widely.
Helping neurologists to improve epilepsy diagnosis in Peterborough and Stamford Hospitals - Peterborough and Stamford NHS Trust is encouraging the families of children with epilepsy to upload videos of their seizures to Patients Know Best to help with diagnosis.
Improving care for Leukaemia patients in Oxford University Hospitals - Cancer patients in Oxford are benefitting from a medical records system which provides them with more support outside of the clinic and in the community.
The world’s first patient-powered registry for Gaucher’s Disease - Dutch not-for-profit organisation, Fair Medicine was founded to shine a light upon – and improve the complicated and often opaque process used to develop new pharmaceutical treatments. A system they believe doesn’t work well for the patient – or drug purchasers.
From dependence to freedom – PKB and Delphi Medical - Established in 2007, Delphi Medical employs over 60 doctors, nurses, and supporting staff. The organisation provides drug and alcohol clinical services to communities across Lancashire, Sefton and to two prisons in the North West of England.
Care Information Exchange – The largest shared patient portal program in the UK - In 2015, Patients Know Best (PKB) teamed up with NHS healthcare providers in North West London to roll out the ‘Care Information Exchange’ (CIE) – a single patient portal hosting the records of over 2.3 million people living in North West London.
Alkaptonuria Society – self managing a rare genetic disease - Simon Laxon is one of only around 80 people in the UK known to have Alkaptonuria or AKU – a highly rare inherited genetic disease which often leads to a range of other interrelated and often debilitating conditions such as osteoarthritis, heart problems and kidney infections. ​
Generating savings for investment in patient care - It’s a common picture; hospitals sending out thousands of appointment letters every day via post and out of those some go missing and needless to say, it all comes at a huge cost.
A national integration unlocks patient empowerment in Wales - Abertawe Bro Morgannwg University (ABMU) Health Board had a bold vision to promote self efficacy and unlock patient empowerment across Wales.
Better care leads to savings in Inflammatory Bowel Disease - Ulcerative Colitis and Crohn’s Disease are the two main forms of Inflammatory Bowel Disease (IBD) – a long-term condition affecting more than 300,000 people in the UK. IBD causes inflammation of the gut where symptoms can flare up at any time.
Better communication leads to better care for HIV patients - In 2014, Derriford Hospital in Plymouth became one of the first NHS hospital trusts in the UK to use Patients Know Best (PKB) to manage the care of its entire cohort of HIV patients – through a pilot study supported by Janssen, a pharmaceutical company of Johnson & Johnson.
Remote monitoring facilitates the management of Inflammatory Bowel Disease - Luton and Dunstable NHS Foundation Trust started using Patients Know Best (PKB) to remotely monitor patients with inflammatory bowel disease (IBD).
A personal story leads to a local solution in Torbay and South Devon - In 2011, Gary Hotine, Health Informatics Service Director, at Torbay and South Devon NHS Foundation Trust (TSDFT), contacted Patients Know Best (PKB) looking for a solution to join up communication between healthcare services and patients or carers.
Transitioning teenagers from paediatrics to adult care - Great Ormond Street Hospital (GOSH) is home to a leading gastroenterology department caring for some of the most poorly children and teenagers across the country and beyond.
Pioneering aftercare for trauma patients – North Bristol NHS Trust - Patients treated at a major trauma centre in Bristol are the first in the country to receive digital eRehabilitation Prescriptions following discharge from hospital.

Transitioning care from paediatrics to adult care - Great Ormond Street Hospital

As one of the largest children's hospitals in the UK, Great Ormond Street Hospital (GOSH) is home to a leading gastroenterology department caring for some of the most poorly children and teenagers across the country and beyond.

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