Product Strategy 2020-2023


Our vision at Patients Know Best is to create a single record for each person that is complete, real-time and accurate. It is available for the patient from cradle to grave, everywhere they go and anytime they receive care.

This Product Strategy shows our long-term product direction to help us achieve this vision. It reflects what we have learned from working with our customers across the health and care sector for over 12 years.


 

Extensive 3rd party integrations

The more data that flows into PKB from third party systems, the more complete and real-time the patient record becomes.

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Open APIs

We are continuing to extend our application programming interfaces. With the correct consent for each patient, all data in PKB should be available for access and editing by third party systems. Our proprietary APIs are Creative Commons licensed.

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FHIR standard

We are committed to FHIR APIs, the international standard for health care interoperability. FHIR APIs for demographics, medications, diagnoses and allergies are currently under development, and we will continue to cover all other datasets that have a FHIR API standard.

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Push APIs

We offer push (publish/ subscribe) APIs so that external systems receive new data quasi-real-time. This allows third party systems to identify patients that require intervention so they can be notified along with the  professionals who can offer help and support.

The first step in this work started in 2020 as we collaborated with the CMyLife blood cancer platform in the Netherlands.

Working towards a comprehensive and complete data model

We will continue to expand our datasets to cover the full health of a person. This includes procedures, vaccinations, safeguarding and family history. We will use existing international standards for these datasets and make the data available bidirectionally via APIs, using FHIR whenever possible.

Furthermore, will also expose behaviour data through the API as metrics. For example, the frequency of patient logins into PKB, lack of logins, the data the patient looked at etc. These are likely proxies for patient activation, and the Patient Activation Measure (PAM) Score is a leading indicator for later health outcomes.

Making it easy and convenient to use

We want all users contributing to a patient’s health to have easy and convenient access to the patient data. Ease and convenience drives speed and actions. Early actions prevent later deterioration and thus better health outcomes.

Usability is key to achieve these goals. In order to improve usability and user experience, we continue to prioritise mobile clients because over 60% of PKB’s usage is via mobile devices. Therefore, we will add:

  • Biometric authentication for easy and convenient logins.
  • Calendar integration so patients can easily integrate their health appointments with the rest of their schedule.
  • Notifications in browser and mobile to extend the current notifications received via email. Browser and mobile notifications are more convenient for more users.
  • Links to Apple HealthKit and Google Fit.

Finally, we will also provide dedicated apps for Android and iOS platforms for use cases where native applications provide superior user experience.

Pioneering industry-leading security

We will continue to encrypt all data at rest and in transit, and we will keep and extend our additional layer of asymmetric encryption. However, in order to further increase security, we will continue to roll out multi-factor authentication methods, starting with TOTP.

Offering convenient and scalable onboarding

It's complex to allow convenient and scalable identity verification and patient registration. This is because PKB’s security model is built on encryption (controlled through patient registration) while record accuracy is built on identifiers (controlled through identity verification). An organisation can verify the identifiers of the patients treated, but not the email addresses of these patients. A patient can verify their email address, but not their identifier.

We are working towards separating these processes by integrating with services like NHS Login (England) and MedMij (Netherlands), so that patients can verify their identity without waiting for an organisation to create a PKB record. We are working towards bringing similar integrations to other nations in the next few years.

We are also investigating the possibility of federating records i.e. using a single login to access multiple records that belong to the same patient. This will allow the patient to register with a record without a verified identifier. It also allows organisations creating a patient's record with a temporary identifier to make the new record available with the other records of the patient, once they have verified the identity.

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