Patient Story - SASH
This page is part of the documentation of the work of Surrey and Sussex Healthcare NHS Trust.
Case study: PKB - a lifeline for a bright student
As someone who had always previously been very healthy, the news of the diagnosis came as a shock to Liam and his family and also put in to question his future at university. Liam required regular close support from his healthcare team to monitor any flare-ups.
Shortly after the diagnosis, Liam was given access to his PKB account. He used this to educate himself about his new condition and also to monitor his blood tests, manage appointments and communicate directly with his specialist team, including Dr Ansari (Consultant Gastroenterologist, at East Surrey Hospital). He said:
I use it as a quick way to contact the people I need to get in touch with at a much quicker timescale than it would take me if I were to use the other services. By early intervention, it allows me to prevent my condition from getting worse and then having to use the other emergency services.
As an example, when I had to use my GP, it took over a month before I was referred and my condition severely worsened in that time space. With PKB, I am able to contact the necessary people in order to improve the outcome of my condition much quicker. I usually get a response the same working day which is excellent. Since I have been able to effectively use PKB, I have not been re-admitted to hospital as an early intervention approach has been taken and, for me, this has had a good impact on my personal wellbeing.
Now that I have returned to university, it is important for me to use PKB to contact the necessary people for my care when needed like Dr Ansari. For example, last week my kidney test results came back high so I contacted Dr Ansari for advice as, unfortunately, I do not have access to the same quality of support for my IBD in Portsmouth as I do in Surrey.