In 2020, Luton CCG began to pilot a patient-controlled medical record for children in Luton living with epilepsy: ‘Patients Know Best’ (PKB). This record empowers parents in their role as care coordinators for their children, and enables self-management and self-care by sharing educational materials such as care plans and verified links. It ensures the parent is equipped with all the information they need to support their child.
This is a joint project with the Luton & Dunstable Hospital and Cambridgeshire Community Services (provider of children’s community health services in Luton).
Read the full case study below (11 pages in total).