Integrated Patient-Controlled Medical Record – Luton CCG
22 April 2022
This is a joint project with the Luton & Dunstable Hospital and Cambridgeshire Community Services (provider of children’s community health services in Luton).
In 2020, Luton CCG began to pilot a patient-controlled medical record for children in Luton living with epilepsy: ‘Patients Know Best’ (PKB). This record empowers parents in their role as care coordinators for their children, and enables self-management and self-care by sharing educational materials such as care plans and verified links. It ensures the parent is equipped with all the information they need to support their child.
Read the full case study below (11 pages in total).
