Patients Know Best (PKB) has been working with Swansea Bay University Health Board since 2015 to connect patients with their health and care information and provide the tools that enable them to self-assess and manage their conditions.
Improving access to sexual health services
The COVID-19 restrictions established in March meant that patients were no longer able to use walk-in clinics to seek treatment or advice for sexual health issues in Plymouth.
Pharmacy students experience digital patient care
Undergraduate Pharmacy students at Liverpool John Moores University (LJMU), have been given the opportunity to experience the future digital patient care, using Patients Know Best (PKB) – the world’s first fully patient-controlled online personal health record.
Monitoring the safety of ketamine in treatment-resistant depression
Ketamine is newly recognised as a rapidly acting antidepressant which works in a different way to conventional antidepressants.
Putting online consultation at the heart of the teaching curriculum
University of Leicester’s Medical School is putting online consultation at the heart of its teaching curriculum for first-year medical students – a first for any university in the UK.
Visceral Myopathy, a Patient Story from St Marks Hospital
St Mark’s Hospital patient Jason Murtagh has a condition called Visceral Myopathy, a highly rare chronic disease which means that his gut fails to properly absorb nutrients – indeed the condition is so rare that few gastroenterologists will encounter a case in their careers.
Care Information Exchange – The largest shared patient portal program in the UK
The Care Information Exchange is the first population-level roll out and the largest shared record patient-portal program across the UK, hosting the health records of over 2.3 million people in North West London. The patients are from all across the UK including every country, island and health board.
Alkaptonuria Society – self managing a rare genetic disease
Simon Laxon is one of only around 80 people in the UK known to have Alkaptonuria or AKU – a highly rare inherited genetic disease which often leads to a range of other interrelated and often debilitating conditions such as osteoarthritis, heart problems and kidney infections.
Generating savings for investment in patient care
It’s a common picture; hospitals sending out thousands of appointment letters every day via post and out of those some go missing and needless to say, it all comes at a huge cost.
Better communication leads to better care for HIV patients
Derriford Hospital in Plymouth became one of the first NHS hospital trusts in the UK to use Patients Know Best (PKB) to manage the care of its entire cohort of HIV patients – through a pilot study supported by Janssen, a pharmaceutical company of Johnson & Johnson.
Sexual Health and HIV Consultant, Dr Zoe Warwick, lead the initial rollout in 2014, and today, the system is actively used by well over 300 HIV patients across Plymouth and the South West of England.










