Halving HIV clinic times in North Manchester General Hospital

Lloyd Bettell-HigginsCase Study

FeaturedNews 9 October 2020 by Gurpreet Sarai The Regional Infectious Diseases Unit (RIDU) based at North Manchester General Hospital is one of the largest units of its kind anywhere in the UK and offers specialist clinical services to patients across Greater Manchester – and more widely. Digital care for 2000 HIV patients In 2014, the RIDU rolled out Patients Know … Read More

Helping neurologists to improve epilepsy diagnosis in Peterborough and Stamford Hospitals

Lloyd Bettell-HigginsCase Study

Peterborough and Stamford NHS Trust is encouraging the families of children with epilepsy to upload videos of their seizures to Patients Know Best to help with diagnosis. Dr Richard Brown, consultant paediatrician at the trust, said the system was having a significant impact on patient care as it makes it easier for families to share video footage, which is “crucial … Read More

Improving care for Leukaemia patients in Oxford University Hospitals

Lloyd Bettell-HigginsCase Study

Cancer patients in Oxford are benefitting from a medical records system which provides them with more support outside of the clinic and in the community. Professor Anna Schuh, a consultant haematologist at the Oxford Cancer Centre, which is based at the Churchill Hospital in Oxford, began using Patients Know Best, a patient-controlled system in 2015. Professor Schuh is a leading authority on … Read More

The world’s first patient-powered registry for Gaucher’s Disease

Lloyd Bettell-HigginsCase Study

Dutch not-for-profit organisation, Fair Medicine was founded to shine a light upon – and improve the complicated and often opaque process used to develop new pharmaceutical treatments. A system they believe doesn’t work well for the patient – or drug purchasers. Since 2015, Fair Medicine has been working with Patients Know Best to develop a more open model for drug … Read More

From dependence to freedom – PKB and Delphi Medical

Lloyd Bettell-HigginsCase Study

Established in 2007, Delphi Medical employs over 60 doctors, nurses, and supporting staff. The organisation provides drug and alcohol clinical services to communities across Lancashire, Sefton and to two prisons in the North West of England. Delphi Medical is a leading independent provider of clinical services for substance misuse patients and the first provider of its type in the UK … Read More

Care Information Exchange – The largest shared patient portal program in the UK

Lloyd Bettell-HigginsCase Study

The Care Information Exchange is the first population-level roll out and the largest shared record patient-portal program across the UK, hosting the health records of over 2.3 million people in North West London. The patients are from all across the UK including every country, island and health board. In 2015, Patients Know Best (PKB) teamed up with NHS healthcare providers … Read More

Alkaptonuria Society – self managing a rare genetic disease

Lloyd Bettell-HigginsCase Study

Simon Laxon is one of only around 80 people in the UK known to have Alkaptonuria or AKU – a highly rare inherited genetic disease which often leads to a range of other interrelated and often debilitating conditions such as osteoarthritis, heart problems and kidney infections. ​ Living in Coventry, Simon must be treated by a whole host of different … Read More

Generating savings for investment in patient care

Lloyd Bettell-HigginsCase Study

It’s a common picture; hospitals sending out thousands of appointment letters every day via post and out of those some go missing and needless to say, it all comes at a huge cost. For Western Sussex Hospitals NHS Foundation Trust (WSHFT), it’s a similar story. Letters to patients are sent via royal mail but before that, they have to be … Read More

A national integration unlocks patient empowerment in Wales

Lloyd Bettell-HigginsCase Study

Abertawe Bro Morgannwg University (ABMU) Health Board had a bold vision to promote self efficacy and unlock patient empowerment across Wales. Armed with a team of passionate changemakers, they looked for a solution that would enable patients to be more involved in their care by securely providing access to their own health records . As a multi-award winning tool designed … Read More

Better care leads to savings in Inflammatory Bowel Disease

Lloyd Bettell-HigginsCase Study

FeaturedNews 9 October 2020 by Gurpreet Sarai Ulcerative Colitis and Crohn’s Disease are the two main forms of Inflammatory Bowel Disease (IBD) – a long-term condition affecting more than 300,000 people in the UK. IBD causes inflammation of the gut where symptoms can flare up at any time. The importance of monitoring Regular monitoring using a patient-initiated follow-up (PIFU) approach, … Read More