The UK Kidney Association (UKKA) chose Patients Know Best (PKB) as its new software provider to support kidney patients in receiving their healthcare data in a more modern and secure personal health record. Along with kidney data, PKB allows patients to add their own information as well as receive other health information from other healthcare providers (if they are using PKB) giving a full health record in one easily accessible place.
Background information, programme updates and FAQs can be found on the Patients Know Best page provided by the UKKA on their website.
If you are a kidney patient planning to register (or have recently registered), please contact your local kidney centre to make sure they have enabled your patient data to be sent to the UKKA. The UKKA then sends this into PKB for you to view. For any other queries regarding your kidney data, contact the UKKA by emailing pkb-support@ukkidney.org.
Find out about the history of the UK Renal Data Collaboration (UKRDC).
If you need any guidance during the sign up process, you can contact PKB here for additional support. For any other queries regarding your kidney data, contact the UKKA by emailing pkb-support@ukkidney.org.
How to register
IF YOU ARE NOT REGISTERED WITH PKB
For patients in England : Click register below.
IF YOU ARE REGISTERED WITH PKB
For patients in England and Wales : Connect yourself to the UKKA team by clicking register below.
For patients in Scotland, Wales and Northern Ireland
wanting to register - provide your team at your kidney centre with your email address and when ready they will send you an invite to register.
Find out more about how to register using NHS login in our short video here!
Retha Steenkamp, Head of Operations, The UK Kidney Association/UK Renal Registry
“Partnering with a leading provider of digital personal health records has been a significant step for the UK Kidney Association and showcases our determination to provide quality platforms to streamline the care of people living with kidney disease. It was important that as an organisation, we continued to evolve to meet the needs of the kidney communities that we serve.
Working with PKB, we aim to provide a secure environment in which patients can access their data and take control of how their information is shared, and with whom. For patients and kidney teams, this means increased security, and advanced features and functionality, including team-based messaging and an ecosystem of integrated wearable and monitoring devices to support clinical transformation.
Implementing digital solutions and empowering people living with kidney disease to access them is a core part of the quality improvement work that we undertake at the UK Kidney Association. We are looking forward to the positive changes that working with PKB brings and to offering people with kidney disease and our kidney communities with enhanced platforms and portals to streamline their care.”