Gastrointestinal Nursing Paper - St Marks
Monitoring biologics in inflammatory bowel disease (IBD) using the Patients Know Best electronic portal: pilot study of uptake, acceptability and outcomes
Nikolaos Kamperidis, Clinical Research Fellow; Marian O’Connor, Clinical Nurse Specialist; Kay Crook, Clinical Nurse Specialist; Naila Arebi, Consultant Gastroenterologist, all at St Mark’s Hospital, Harrow, London
Nikolaos Kamperidis, Marian O’Connor and Naila Arebi
Gastrointestinal Nursing 2018 16:9, 1-6
Methods: IBD patients prescribed biologics were invited to register and trained online. The authors measured the number of new starters, PKB registrants, time intervals to treatment and the nature of online activity. Patients using the application received an evaluation questionnaire 6 months after enrolment.
Results: Out of 40 patients newly started on biologics, 33 years were included, with a mean (SD) age of 44.3 (13.3) years. The mean time interval from decision to treatment administration was 82.7 days (44.0). Ten patients raised at least one issue on PKB; 45 new issues were raised, mostly relevant to active disease (18/45), adverse events of treatments (6/45) and the funding application process (5/45)—39 were resolved online. Of patients, 16 answered the questionnaire, and 11 found it at least somewhat helpful. More training was requested.
Conclusions: The use of PKB did not accelerate the process of drug administration. However, patients engaged with the use of the platform, several issues were raised and most of these were resolved electronically. Regular training and individual treatment plans for patients starting biologics may optimise PKB’s use for long-term monitoring.